Leukemia bone pain what does it feel like – leukemia forum – ehealthforum blood transfusion for cancer patients

So, I am being part paranoid and part detective. Yesterday I finally went in to the doctor after dealing with strange bruises on my legs for a few weeks. I have so many that my family was concerned and made me go to the dr (of different sizes as well. Some as small as a pencil eraser, or smaller, and some huge — as big as a baseball).

During the course of my exam the doctor asked a bunch of questions that I never would have thought to ask, like if my skin is itchy or if I have nightsweats, etc (answer to both: yes). Another topic she touched on was pain, and although I have several different types of pain, they were nothing I wouldn’t shrug off: headaches, abdominal pain/naseau (hard to really describe that one… its kind of both), and achiness.

My bone pain is not long lasting. It’s usually an achiness that comes up for a minute or so, but then fades away.


Sometimes it’s in my joints: hips, knees, shoulders, wrists. But other times it’s in my extremities, like forearms and legs. Sometimes its very sharp but then fades away within seconds.

I’ve cleaned up my diet, although I already ate carefully (organic foods, lots of fresh fruit and veggies); I eat iron-containing foods and am managing my anemia without pharmaceutical iron supplements (switched to cast iron cookware, and take Spatone iron supplements, available in liquid pouches from health stores … NO nasty iron supplement side effects from this stuff!). After a long period of exhaustion, I’m truly feeling much better. So far, my doctors have chosen no treatment (I’m ok with that).

Because of the depression I experienced with the anemia, I take three capsules of St. John’s Wort and two melatonin tabs every night (I fiddled with the doses until I found a combination that works for me). I am sleeping much better, and my memory has improved remarkably. My sleep goes through all the normal cycles, and I wake up feeling refreshed. I take it about 9 hours before I want to get up.

Overall, I’m feeling better now than I have for the last couple of years. I was first diagnosed with a pre-leukemia blood disorder (monoclonal b-cell lymphocytosis) about two years ago, and am actually relieved now that the CLL has been diagnosed. It’s not a death sentence, and I’m overall feeling very good, other than this BONE PAIN!

I’ve cleaned up my diet, although I already ate carefully (organic foods, lots of fresh fruit and veggies); I eat iron-containing foods and am managing my anemia without pharmaceutical iron supplements (switched to cast iron cookware, and take Spatone iron supplements, available in liquid pouches from health stores … NO nasty iron supplement side effects from this stuff!). After a long period of exhaustion, I’m truly feeling much better. So far, my doctors have chosen no treatment (I’m ok with that).

Because of the depression I experienced with the anemia, I take three capsules of St. John’s Wort and two melatonin tabs every night (I fiddled with the doses until I found a combination that works for me). I am sleeping much better, and my memory has improved remarkably. My sleep goes through all the normal cycles, and I wake up feeling refreshed. I take it about 9 hours before I want to get up.

Overall, I’m feeling better now than I have for the last couple of years. I was first diagnosed with a pre-leukemia blood disorder (monoclonal b-cell lymphocytosis) about two years ago, and am actually relieved now that the CLL has been diagnosed. It’s not a death sentence, and I’m overall feeling very good, other than this BONE PAIN!